Mya's MRI Results

First things first, Mya’s MRI came back normal! We are so thankful for those results. However, while we were at Kosair, the good people up there left the question in our minds as to why they haven't checked Mya's heart. At least 3 different people questioned us about her "heart tests", which she has not had. One lady even stated, "She’s having this problem, and they haven't checked her heart?" So, now we have to wonder about that. In the mean time the doctor has told us to call them immediately if she has another episode and they will run an EEG to monitor for seizure activity. We're discussing what we should do as far as approaching the doctor about the heart stuff.

Last night, when putting Mya’s pajamas on her, I noticed a terrible looking rash on her chest. The discharge papers from Kosair said that we should contact our pediatrician immediately, call 911 or take her to the nearest emergency room if she develops a rash. We weren’t sure if a reaction to the MRI contrast would develop a rash at this point (it had been more then 24 hours since the test), so I called Kosair, Care First, and then the local hospital, trying to get someone to tell me whether or not we should panic be concerned. The lady at Care First said the contrast, being put in an IV, is in her blood system, and could cause an allergic reaction at various times. She advised we take her to the ER since the rash could quickly turn into Anaphylactic Shock. To make a long story short, after several phone calls, we ended up at the ER to have the rash evaluated. It was a simple allergic rash, to something, but not the MRI contrast. The doctor at the ER told us, had it been a reaction to the contrast, she would have had problems within a few hours. Bob and I thought that might be the case, but after the Anaphylactic Shock comment, we didn’t want to take any chances.

While at the ER, with a doctor face to face, and not a nurse on the phone, I took the opportunity to ask about Mya’s passing out, seizure episodes, memory loss and why Kosair kept referring to the heart tests. Should we push the heart tests on her doctor? Should we be overly concerned that she might have a heart defect? The ER doctor told us that we should probably approach our pediatrician and let her know our concerns. Bob seems to think we should wait until she has another episode and follow the doctor’s instructions. I’m still torn. While I’m extremely worried there could be an underlying condition, I don’t want to put Mya through a bunch of testing that might otherwise prove to be unnecessary. The episodes are so scary, and I would love to be able to find out what’s wrong and hopefully prevent another one. As a Mom, and you moms out there know how it is, you know when something isn’t right with your kids. In Mya’s case, I know she doesn’t forget anything, not even the smallest details, so for her to be having the seizure like episodes, and losing almost an entire day’s worth of memory, tells me these are more than just passing out spells. Oh, I forgot to mention above, the pediatrician has diagnosed her “episodes” as Syncope, which is considered to be “fainting spells”. I’m not so convinced, yet I can’t decide what to do. I don’t want to come off as a Munenhauser mom (just a little humor), but this really worries me.

On a different note, my brother was admitted to Life Springs yesterday. The doctor said he is suffering from severe depression. I just hate this, and I feel so helpless. Joe has been through so much in the past 5 years. His battle with cancer, and not being able to afford to complete his chemo treatment, losing everything, and now going through some personal issues, I can see why he’s having problems. I wish he would have talked to someone sooner, and not let himself get this point. I’ve never seen this side of my brother. He’s always been so laid back and easy going. I wish there was something I could say or do to help him. I hope he gets the help he needs. I’m just thankful that he asked for help.

As usual, it’s never a dull moment in our family!

TTFN!